I am writing this blog to draw your attention to the plight of my friend's condition who is undergoing a very crucial stage of his life fighting with a very rare disease called "Budd-Chiari syndrome". It is a very rare disease,in fact it occurs only in 1 out of 100,000 individuals.
My friend's family has been going around different parts of the country for the last 8 months, for the specialized treatment of this disease.
His problem started with complaints of pain in abdomen, vomiting and then difficulty in breathing and Chest pain.
In two different Hospitals he was diagnosed with liver abscess(pus-filled mass inside or attached to the liver )
He was also diagnosed with having Pleural effusion. Pleural effusion is excess fluid that accumulates in the pleural cavity, the fluid-filled space that surrounds the lungs. Excessive amounts of such fluid can impair breathing by limiting the expansion of the lungs during inhalation.
The excessive fluid created was then artificially drained out and a chest tube was placed inside the pleural space for further removal of the excess fluid formed(which is used to remove at least 250-800 ml of liquid daily)
CT of upper abdomen was suggestive of Hepatic vein thrombosis (Budd-Chiari syndrome)
Portal Venography showed abnormality in the IVC(inferior vena cava) and hence the patient was referred to the specialized centre- SGPGI,Lucknow.
There the disease was diagnosed as Acute Budd-Chiari syndrome (along with some more problems like pleural effusion).
The final conclusion of Doctors there noted following problems-
*Hepatic vein thrombosis with distended azygous and hemiazygous veins.
*Total occlusion of IVC with suprarenal segment.
*Grade 2 varices(now (as of 27-04-10), it has advanced to Grade 3), mild PHG(Portal hypertensive gastropathy).
Ultimately, at SGPI Lucknow, the patient was advised to go for Liver transplant at a centre of own choice.
The patient was then taken to Sir Ganga Ram Hospital, New Delhi.
But there the doctors ruled out the possibility of transplanting liver because the patient's IVC and iliac vein was completely occluded(see Dr's report).
And then the patient was moved to medanta medicity(Gurgaon) for that purpose.There a Radiology examination was done(see its copy)on March 6,2010.
On March 9,2010 the Hospital issued a note of information(or say certificate) saying that the patient was suffering from Budd-Chiari syndrome and he needed the placement of TIPPS(Trans Jugular Intra Hepatic Porta Systemic Shunt) along with IVC stenting. It also said that this intervention needs to be done urgently for his survival and stated the approximate cost of treatment as 6 lacs.
You can see all the relevent medical Certificates/records by clicking here
Now, the financial condition of the family is not good, his father is no more there and his mother is a Housewife, besides they have already spent lots of money in the patient's treatment in the last 8 months, going for different private Hospitals in the Country.
So they are unable to arrange such a large amount(about 6 lacs) in such a short time span(just 20 days).
So please donate whatever amount you can. Remember you are contributing towards saving someone's life.
Thank you so much...
*Now, We have with us, the required amount. So now we are stopping to receive any further contributions. Thank you so much for your support...
**Rahul's Surgery/Operation had been done successfully by Dr. S.S. Baijal and right now he is going Great in his life. He has been re-admitted in NIT Jamshedpur with the new batch and he is carrying on with his regular studies.